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#ActuallyAutistc

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levampyre<p>Unfortunately, the things I have to do (as an adult, worker, wife and mom) are so plentyful that it leaves almost no room (i.e. time) for the things I want to do. I've tried to schedule "me time" for self care (2 hrs on Wed). But it became just another item on my todo list and I couldn't get myself to actually relax and find the head space to even start exploring what I WANTED to do. But always being painfully aware of all the things I HAD to do. 2/3</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>actuallyautistic</span></a></span> <a href="https://chaos.social/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a></p>
thejikz<p><span class="h-card" translate="no"><a href="https://beige.party/@roknrol" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>roknrol</span></a></span> dang my friend. could you please write my biography also? LOL<br>In seriousness, this is a constant problem I have had! <br>Stress plus random demand (meaning even light convo with friends) makes just existing impossible at times until I snap into "serving myself" finally.<br>Water and food get put last very quickly- I had lost 40lbs in about 2 months a coulle years back due to this same issue, it was extremely sketchy for a time. <br>Very glad you are ok from that one and identified it too.<br><a href="https://infosec.exchange/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a> <a href="https://infosec.exchange/tags/ActuallyAdhd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAdhd</span></a> <a href="https://infosec.exchange/tags/ActuallyAudhd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAudhd</span></a></p>
Aoife Greenham<p>I think I just realised that through all the different phases in my life, adhd struggles (just got my diagnosis) autism symptoms (still waiting for official dx) Anxiety and social confusions and now the onset of perimenopause hormone fubars, the one thing that has consistently not helped is pushing through. And realising that has been quite nice.<br>Am I going out? No! Why? I don't want to! <br><a href="https://mastodon.ie/tags/audhd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>audhd</span></a> <a href="https://mastodon.ie/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a> <a href="https://mastodon.ie/tags/perimenopause" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>perimenopause</span></a></p>
Kate McDonald<p>I wish 'selective mutism' had a different name. The selective part seems to imply that there is choice in the matter. There is a massive difference between choosing not to speak and wanting to speak but struggling to form words or say anything. </p><p><a href="https://hcommons.social/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a> <a href="https://hcommons.social/tags/selectivemutism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>selectivemutism</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>actuallyautistic</span></a></span></p>
Autistrain<p>There are great articles coming out. Another example of the double empathy problem, and the issues with the current diagnostic criteria:</p><p>"Our results thus support a reframing of autism from a social communication disorder to a “description encompassing a broad range of developmental differences and experiences”</p><p>Schuster, B.A., Okamoto, Y., Takahashi, T. et al. A cross-cultural examination of bi-directional mentalising in autistic and non-autistic adults. Molecular Autism 16, 29 (2025). <a href="https://doi.org/10.1186/s13229-025-00659-z" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">doi.org/10.1186/s13229-025-006</span><span class="invisible">59-z</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>actuallyautistic</span></a></span> <a href="https://c.im/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a> <a href="https://c.im/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a></p>
Evan LightFor late-diagnosed autistics/AuDHD folks only
Evan Light<p>RFK Jr is getting his database of autistics from Medicaid and Medicare.</p><p>1. Grateful, for now, not to be on either. He isn't (yet) getting it from insurance companies (but I do wonder if that is not far off).<br>2. Fuck everything about giving this dangerous deluded bastard PII from autistic people.</p><p><a href="https://www.medpagetoday.com/neurology/autism/115471" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">medpagetoday.com/neurology/aut</span><span class="invisible">ism/115471</span></a></p><p><a href="https://tenforward.social/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a> <a href="https://tenforward.social/tags/actuallyaudhd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>actuallyaudhd</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>actuallyautistic</span></a></span></p>
Evan Light<p>Found some preliminary science indicating that anti-inflammatory medication can treat autistic irritability:</p><p><a href="https://www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2024.1333717/full?utm_source=chatgpt.com" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">frontiersin.org/journals/psych</span><span class="invisible">iatry/articles/10.3389/fpsyt.2024.1333717/full?utm_source=chatgpt.com</span></a></p><p><a href="https://pubmed.ncbi.nlm.nih.gov/22782459/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">pubmed.ncbi.nlm.nih.gov/227824</span><span class="invisible">59/</span></a></p><p>Second article/study is a bit gross in that children were being given risperidone (an anti-psychotic!) as well.</p><p>We're not fucking psychotics.</p><p><a href="https://tenforward.social/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a> <a href="https://tenforward.social/tags/actuallyaudhd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>actuallyaudhd</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>actuallyautistic</span></a></span></p>
levampyre<p>Human emotions (&amp; facial expressions) are more complex than allistics give them credit for! I might need a few seconds to process this amount of complexity. My high sensitivity actually forbids to judge without proper process. Because I don't want to miss an important detail.</p><p>And THIS is why I hate being asked "how are you?" just as a phatic means. I am complex things. I feel multiple emotions. And sometimes they battle within me.</p><p>I refuse to oversimplify emotions!</p><p><a href="https://chaos.social/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a></p>
levampyre<p>So these facial expression recognition tests are supposed to tell me that I am unempathetic? Because I cannot tell you within a millisecond that she looks surprised!? Fuck this shit!</p><p>Within 60 seconds I can tell you that she is not just surprised. This is the face of a person who has just learned that her lover betrayed her. She IS surprised, yes. But she's also angry, disappointed, devastated and planning revenge at the same time.</p><p><a href="https://chaos.social/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a></p>
cybervegan<p>I went quiet because it seemed like I had blown my data limit but I now think it was just the sheer number of people (= phones) in a small area. I have a lot more pics I couldn't send, but summary is that it was immense, we marched down to st James park and there were speeches. I bailed out about 1600 as being typical of my <a href="https://autistics.life/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a> self, I felt kind of out of place, not able to "interact" and pretty exhausted too. I'm on the train back now, surprised I can even post this as I've been having trouble texting my wife to keep her updated on events....</p>
cybervegan<p>Made my first change at Wolverhampton, now on a train to Southampton, got to get off at Banbury for the next connection. Hella crowded, got a seat at first but left it because not sure if it was free for long enough to settle down and was feeling penned in, so now I'm shacked out in the luggage compartment. <a href="https://autistics.life/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a> travel is the best.</p>
Meyltje ∞ 🍋 🏳️‍🌈<p>Net begonnen in 'Het Grote Autismeboek' van Erik Jan Harmens. Heerlijk! <a href="https://mastodon.world/tags/Bookstodon" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Bookstodon</span></a> <a href="https://mastodon.world/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a></p>
recursive 🏳️‍🌈<p>I've been thinking about how difficult it is for a lot of autistic folks to have an enjoyable time of the entire sphere of experiences in society which are "go somewhere and pay someone to do something caring for you", e.g. haircut, body piercing, getting your nails done, getting a massage</p><p>Mostly because of sensory issues or society being extremely bad at communicating expectations</p><p>And it's unfortunate because those are one of the most straightforward ways in this society for a person to just be vulnerable for a bit and feel taken care of</p><p><a href="https://hachyderm.io/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a></p>
cybervegan<p><a href="https://autistics.life/tags/JournalEverything" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>JournalEverything</span></a> My turn to make <a href="https://autistics.life/tags/dinner" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dinner</span></a> today. With limited fresh ingredients and various family members having certain "requirements" I opted for my old standby of "stir fry". Mixed veg - broccoli, carrots, sugar snap peas, red pepper, sweet potato and mushrooms. Wife's is with shallot, sweet potato, mushrooms, seaweed, but without noodles, young uns have fat noodles but no onions, sweet potato, seaweed or mushrooms, and I have all in with brown rice noodles and miso. <a href="https://autistics.life/tags/vegan" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>vegan</span></a> <a href="https://autistics.life/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a> <a href="https://autistics.life/tags/SensoryIssues" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SensoryIssues</span></a> </p><p>[Edit: added photos that I forgot] [edit 2 corrected <a href="https://autistics.life/tags/AutoCorrupt" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>AutoCorrupt</span></a> typos]</p>
dreieck<p>(1/3)</p><p>Those texts about <a href="https://chaos.social/tags/trauma" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>trauma</span></a>-<a href="https://chaos.social/tags/informed" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>informed</span></a> beeing-<a href="https://chaos.social/tags/autistic" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autistic</span></a> I found resonating:</p><p><a href="http://traumageek.com/blog/discovering-a-trauma-informed-positive-autisticnbspidentity" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">http://</span><span class="ellipsis">traumageek.com/blog/discoverin</span><span class="invisible">g-a-trauma-informed-positive-autisticnbspidentity</span></a><br><a href="http://traumageek.com/blog/lost-in-translation-the-social-language-theory-of-neurodivergence" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">http://</span><span class="ellipsis">traumageek.com/blog/lost-in-tr</span><span class="invisible">anslation-the-social-language-theory-of-neurodivergence</span></a><br><a href="http://traumageek.com/blog/social-language-theory-part-2" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">http://</span><span class="ellipsis">traumageek.com/blog/social-lan</span><span class="invisible">guage-theory-part-2</span></a><br>(the third one not so much anymore, but it is the sequel to the second one).</p><p>Therein I find <a href="https://chaos.social/tags/education" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>education</span></a>‍al value to bring <a href="https://chaos.social/tags/neurodiversity" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>neurodiversity</span></a> <a href="https://chaos.social/tags/awareness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>awareness</span></a> to groups wanting <a href="https://chaos.social/tags/diversity" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>diversity</span></a>-<a href="https://chaos.social/tags/inclusion" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>inclusion</span></a> but are not aware of neurodiversity: Where there can be diversity too, and how can it look for example.</p><p><a href="https://chaos.social/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a> <a href="https://chaos.social/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a> <a href="https://chaos.social/tags/traumasensibel" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>traumasensibel</span></a> <a href="https://chaos.social/tags/mentalhealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mentalhealth</span></a></p>
Simon Brooke<p><span class="h-card" translate="no"><a href="https://universeodon.com/@StrassenKatze" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>StrassenKatze</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>actuallyautistic</span></a></span> Autism is also the superpower of seeing many things most people can't perceive, and intuitively understanding many things most people can't understand.</p><p>I hate it when autism is described in terms of its deficits. Yes, we do have deficits, and for some of us they're disabling -- but we also have strengths, and they're enormous strengths.</p><p><a href="https://mastodon.scot/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a>, and PROUD!</p>
levampyre<p>Hey, fellow people on the spectrum, when you do repetitive tasks (like shovelling dirt or sowing seeds or cutting carrot slices), do you usually count the repetitions? I do it subconsciously ever so often and then I become aware that I'm doing it and then I stop counting. Because I feel stupid for counting in my head, when it's not even necessary. Do you usually count repetitions? <a href="https://chaos.social/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a></p>
Karl avec un K<p><span class="h-card" translate="no"><a href="https://infosec.exchange/@cesarpose" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>cesarpose</span></a></span> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/actuallyautistic" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>actuallyautistic</span></a></span> <br>For me, I think the 'tranquility' part is the key. The routines are the part of the day my brain gets a break from constant processing. Like riding a bike, the routines are the downhill part where you can stop pedaling for a bit and just coast. <br><a href="https://qlub.social/tags/actuallyautistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>actuallyautistc</span></a></p>
Flesh 🐀 :voidpunk_heart:<p>So, anyone got some AuDHD-compatible time management tips?</p><p><a href="https://thicc.horse/tags/AuDHD" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>AuDHD</span></a> <a href="https://thicc.horse/tags/adhd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>adhd</span></a> <a href="https://thicc.horse/tags/autism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autism</span></a> <a href="https://thicc.horse/tags/ActuallyAutistc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ActuallyAutistc</span></a> <a href="https://thicc.horse/tags/askfedi" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>askfedi</span></a> <a href="https://thicc.horse/tags/productivity" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>productivity</span></a></p>