Folks think that when someone is chronically ill, support is provided based on severity of condition
That if you get worse & can’t care for yourself help will magically appear
It doesn’t. Unless you’re wealthy or have family, you’re on your own
Many die or become more disabled due to lack of help.
Offer actual tangible help in lieu of unsolicited “advice”. Give to mutual aid. Help us fight for better social services.
Every time I access healthcare, at least one of the doctors is sniffling, snuffling, clearing their throat, coughing, technician is sneezing (rather theatrically!!), reception has a cough, and no one is masked.
It's always disappointing when HEALTHCARE workers are doing nothing to prevent virus transmission. Big "You had one job" energy.
I bought the Rabbit R1 — even though it’s not for me
As a blind tech user, I knew the R1 wouldn’t be accessible.
But I bought it anyway. Why?
Because if we aren’t testing and speaking up, accessibility won’t improve. Inclusion starts with showing up.
In my latest blog post, I explain why blind voices are essential in AI—and what I hope comes from this.
Read:
https://open.substack.com/pub/taylorarndt/p/why-i-bought-the-rabbit-r1-even-though
#RabbitR1 #Accessibility #BlindTech #AI #Inclusion #FediTech #DisabilityJustice
Buchtipp zum #ProtestTag5Mai
Subjekte der Inklusion
Die Theorie der trilemmatischen Inklusion zum Mitfühlen
von der großartigen Mai-Anh Boger 
"Dieses Buch handelt von dem dissonanten Begehren, nicht diskriminiert zu werden. [...] Es ist geschrieben worden für alle, die (a) sich anders fühlen oder (b) darauf bestehen, ganz normale Menschen zu sein oder (c) sich fragen, ob die Worte ‚anders‘ und ‚normal‘ für sie überhaupt Sinn ergeben oder (d) alles davon auf einmal – in einem manchmal kaum aushaltbaren Gewirr der Selbstbefragung, sowie für deren Pädagog_innen und andere, die dieses Gefühl verstehen wollen."
https://www.edition-assemblage.de/buecher/subjekte-der-inklusion/
Im ernst, retootet nicht meine Beiträge, ich mache oft genug Krüppelposting und bekomme fast jeden Tag > 50 Boosts von euch (danke <3). Schreibt mal was eigenes. Flutet die Timelines. Und wenn’s nur „#DisabilityJustice #ProtestTag5Mai“ ist - jeder Soli hilft, jedes anregen, jedes Nachdenken. Für systemische Änderungen.
"Eugenics isn't just about eradicating the lesser people like myself, like people with disabilities, it's about attaching disability to marginalized communities in order to slate them for eradication."
Fantastic crash course in eugenics, ableism & anti blackness by the indomitable Imani Barbarin.
I am hosting a race and documentary to spread awareness against ABA in November.
https://www.facebook.com/share/1AMm2J8A49/
#AntiABA #EndABA #ABAReform #StopABA #Neurodiversity #ActuallyAutistic #AutisticVoices #ListenToAutistics #DisabilityRights #AutismAdvocacy #SayNoToABA #AutismAcceptance #ABAisAbuse
#AutisticJustice #AutisticRights #AutismEducation #AutismAwareness #HumanRights #AutismRevolution #StopTheHarm #BanABA #NothingAboutUsWithoutUs #AutisticCommunity #Neurodivergent #DisabilityJustice
Today, I attended the first day of RESILIENCE 2025: A Groundbreaking Conference on Multiple Chemical Sensitivity (MCS).
I am bolstered by the science, the advocacy, the push for accessibility standards, and the treatment options.
#EnvironmentalHealth #AirQuality #IndoorAirQuality #ScentFree #DisabilityJustice
https://aseq-ehaq.ca/en/introducing-resilience-2025-a-groundbreaking-conference-on-multiple-chemical-sensitivity-mcs/
These community gatherings are such a joy, especially now that it's warming up and the flowers are in bloom 
Our next social is May 11th. Masks required - we keep us safe (we'll have lots if you need some). See you soon!
In my twenties, I was denied a medically necessary hysterectomy because I “might meet a man who wants kids”
I fought for years to get the surgery, spending weeks out of every month stuck in a hospital bed needing iron and blood transfusions. Too disabled to work. Fainting almost daily. In constant pain.
No matter how sick I got, the hypothetical future husband and baby came before my health. What these imaginary beings might want was more important than what I needed.
When I finally had the surgery, I had a severe post operative complication. The surgeon didn’t believe me. She sent me home.
I had to go to the ER four times before they found the life threatening internal bleed. Each time dismissing me as “attention seeking” or accusing me of not understanding some pain was to be expected.
My then boyfriend saved my life. He got loud and refused to take me home, saying he was convinced I would die.
It turns out, he was right. I had a giant bleed in my belly and an infected abscess that had been growing for weeks while they gaslit and ignored me.
It was a hell of a crash course in medical misogyny, as well as the need to always have an advocate in healthcare settings:
When you’re chronically ill, your baseline means everything.
Non disabled people struggle to understand how easily we can lose function, as well as how hard it is to gain it back.
It’s one of the reasons many chronically ill people are still masking. We don’t have the luxury of denial. We know we won’t be “fine” if we get covid. We know what we’re risking.
My latest is all about how to maintain a baseline, as well as tips and tricks for family & friends to help us save precious energy:
https://www.disabledginger.com/p/maintaining-a-baseline-means-everything
If you participated in any one of the mass protests across the US today… Thank you for rising up & fighting back.
Please also make sure you’re including disabled people. Wear masks, make events accessible, provide bathrooms & transportation. Plan for accessibility and inclusion.
There can be no social justice without disability justice.
#handsoff #teslatakedown #501010 #uspoli #fascism #disability #disabilityjustice #eugenics
“When you’re chronically ill, you become incredibly skilled at hiding the pain. You learn to deliver a convincing “I’m fine” and smile through things that would make a non-disabled person crumble to the floor.
You learn to push your body and your mind way past any reasonable limits.”
https://www.disabledginger.com/p/why-are-chronically-ill-people-forced
Panda Express becomes the latest business to ban masks for employees, insisting that being able to see facial expressions is necessary for team building.
This is ableist & discriminatory. Employees have to apply to be allowed to mask, putting an undue burden on disabled staff.
Not to mention these are minimum wage paying jobs and many staff may not be able to afford a doctors note or whatever arbitrary “proof” the company will require to allow staff to mask.
Dr Oz: “It is the patriotic duty of all Americans to take care of themselves. It’s important for serving in the military, but it’s also important because healthy people don’t consume healthcare resources.”
They’re all eugenicists. They only care about if you can pay taxes & serve in military.
If you “consume resources”? You’re expendable. Unwanted. Useless eater.
Eugenics and fascism always go hand in hand.
https://deadline.com/2025/04/dr-oz-trump-oval-office-1236371948/
I'm searching for groups that advocate for the mobility challenged – for neighborhood infrastructure improvements.
A friend and I have been discussing neighborhood sidewalks and the challenges some face in places in our city.
Are there organizations that advocate for the mobility challenged so that they can receive neighborhood improvements? Maybe they can give us advice as to legal precedents, tell us about positive trends of municipal action that led to improving things in older neighborhoods that tend to have poorer sidewalks?
Our neighborhood group can engage with City Hall and elected officials better if we have more knowledge and advice.
Are there organizations that offer matching grants for municipalities if they make infrastructure improvements? Are there organizations that conduct surveys and studies to identify recommended actions?
Thanks in advance, and greetings from southern New Mexico.
Tom
#Disability
#DisabilityRights
#Accessibility
#Ableism
#DisabilityJustice
I wrote my Disability Manifesto by thinking of all the Disabled people who have shaped my life. All the brilliant books I've read by Disabled people. All the art we've done, all the organizing we've done. Where we found ways to pace, work with our limitations, and where we won battles not despite our disability but of our Disabled selves.
https://reshapingreality.org/2025/04/15/birds-disabled-manifesto/
