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#geneticdata

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homovictimus<p><span class="h-card" translate="no"><a href="https://chaos.social/@RainerMuehlhoff" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>RainerMuehlhoff</span></a></span> <span class="h-card" translate="no"><a href="https://indieweb.social/@alineblankertz" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>alineblankertz</span></a></span> Digital Biocracy and Parallel States: New Mechanisms of Exploitation in the Era of Genetic Conquest @SSRN <a href="https://papers.ssrn.com/sol3/papers.cfm?abstract_id=5329770" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">papers.ssrn.com/sol3/papers.cf</span><span class="invisible">m?abstract_id=5329770</span></a> <br><a href="https://sciences.social/tags/DigitalBiocracy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DigitalBiocracy</span></a> <a href="https://sciences.social/tags/ParallelStates" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ParallelStates</span></a> <a href="https://sciences.social/tags/Biopolitics" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Biopolitics</span></a> <a href="https://sciences.social/tags/GeneticData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticData</span></a> <a href="https://sciences.social/tags/GlobalHealthGovernance" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GlobalHealthGovernance</span></a> <a href="https://sciences.social/tags/EpistemicJustice" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EpistemicJustice</span></a> <a href="https://sciences.social/tags/Neoliberalism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Neoliberalism</span></a> <a href="https://sciences.social/tags/Philanthrocapitalism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Philanthrocapitalism</span></a></p>
PrivacyDigest<p><a href="https://mas.to/tags/Congress" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Congress</span></a> Demands Answers on Data <a href="https://mas.to/tags/Privacy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Privacy</span></a> Ahead of <a href="https://mas.to/tags/23andMe" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23andMe</span></a> Sale </p><p>House <a href="https://mas.to/tags/Democrats" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Democrats</span></a> sent letters to the potential buyers of the <a href="https://mas.to/tags/GeneticTesting" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticTesting</span></a> company, asking how they plan to protect customer <a href="https://mas.to/tags/GeneticData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticData</span></a> under a change of ownership.<br><a href="https://mas.to/tags/dna" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dna</span></a> <a href="https://mas.to/tags/genes" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>genes</span></a></p><p><a href="https://www.wired.com/story/congress-demands-answers-on-data-privacy-ahead-of-23andme-sale/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">wired.com/story/congress-deman</span><span class="invisible">ds-answers-on-data-privacy-ahead-of-23andme-sale/</span></a></p>
PrivacyDigest<p><a href="https://mas.to/tags/23andMe" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23andMe</span></a> Says 15% of Customers Asked To Delete Their <a href="https://mas.to/tags/GeneticData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticData</span></a> Since <a href="https://mas.to/tags/Bankruptcy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Bankruptcy</span></a> - Slashdot</p><p>Since filing for bankruptcy in March, 23andMe has received data deletion requests from 1.9 million users -- around 15% of its customer base. That number was revealed by 23andMe's interim chief executive Joseph <a href="https://mas.to/tags/Selsavage" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Selsavage</span></a> during a House Oversight Committee hearing, during which lawmakers scrutinized the company's sale following an earlier bankruptcy auction. <br><a href="https://mas.to/tags/privacy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>privacy</span></a> <a href="https://mas.to/tags/dna" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>dna</span></a> </p><p><a href="https://science.slashdot.org/story/25/06/11/214242/23andme-says-15-of-customers-asked-to-delete-their-genetic-data-since-bankruptcy?utm_source=rss1.0mainlinkanon&amp;utm_medium=feed" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">science.slashdot.org/story/25/</span><span class="invisible">06/11/214242/23andme-says-15-of-customers-asked-to-delete-their-genetic-data-since-bankruptcy?utm_source=rss1.0mainlinkanon&amp;utm_medium=feed</span></a></p>
UK<p><a href="https://www.europesays.com/uk/175446/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">europesays.com/uk/175446/</span><span class="invisible"></span></a> How to delete genetic data from ’23andMe’ <a href="https://pubeurope.com/tags/23andme" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23andme</span></a> <a href="https://pubeurope.com/tags/account" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>account</span></a> <a href="https://pubeurope.com/tags/Confirm" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Confirm</span></a> <a href="https://pubeurope.com/tags/Delete" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Delete</span></a> <a href="https://pubeurope.com/tags/download" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>download</span></a> <a href="https://pubeurope.com/tags/GeneticData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticData</span></a> <a href="https://pubeurope.com/tags/Genetics" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Genetics</span></a> <a href="https://pubeurope.com/tags/PersonalInformation" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PersonalInformation</span></a> <a href="https://pubeurope.com/tags/Science" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Science</span></a> <a href="https://pubeurope.com/tags/Settings" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Settings</span></a> <a href="https://pubeurope.com/tags/UK" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UK</span></a> <a href="https://pubeurope.com/tags/UnitedKingdom" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnitedKingdom</span></a></p>
UK<p><a href="https://www.europesays.com/uk/174764/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">europesays.com/uk/174764/</span><span class="invisible"></span></a> One Tech Tip: How to protect your 23andMe genetic data <a href="https://pubeurope.com/tags/23andme" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23andme</span></a> <a href="https://pubeurope.com/tags/Chapter11Bankruptcy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Chapter11Bankruptcy</span></a> <a href="https://pubeurope.com/tags/CustomerConsent" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CustomerConsent</span></a> <a href="https://pubeurope.com/tags/DNATestingKits" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DNATestingKits</span></a> <a href="https://pubeurope.com/tags/GeneticData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticData</span></a> <a href="https://pubeurope.com/tags/Genetics" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Genetics</span></a> <a href="https://pubeurope.com/tags/Science" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Science</span></a> <a href="https://pubeurope.com/tags/UK" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UK</span></a> <a href="https://pubeurope.com/tags/UnitedKingdom" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnitedKingdom</span></a></p>
UK<p><a href="https://www.europesays.com/uk/159875/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">europesays.com/uk/159875/</span><span class="invisible"></span></a> Genetic testing company 23andMe to re-auction over 15 million customers’ DNA data with bid starting at $305mn — Details <a href="https://pubeurope.com/tags/23andme" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23andme</span></a> <a href="https://pubeurope.com/tags/ancestry" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ancestry</span></a> <a href="https://pubeurope.com/tags/AnneWojcicki" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>AnneWojcicki</span></a> <a href="https://pubeurope.com/tags/Auction" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Auction</span></a> <a href="https://pubeurope.com/tags/Bankruptcy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Bankruptcy</span></a> <a href="https://pubeurope.com/tags/DataSecurity" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DataSecurity</span></a> <a href="https://pubeurope.com/tags/DNAData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DNAData</span></a> <a href="https://pubeurope.com/tags/DNADataAuction" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DNADataAuction</span></a> <a href="https://pubeurope.com/tags/GeneticData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticData</span></a> <a href="https://pubeurope.com/tags/GeneticTesting" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticTesting</span></a> <a href="https://pubeurope.com/tags/Genetics" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Genetics</span></a> <a href="https://pubeurope.com/tags/PersonalData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PersonalData</span></a> <a href="https://pubeurope.com/tags/PrivacyConcerns" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PrivacyConcerns</span></a> <a href="https://pubeurope.com/tags/Regeneron" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Regeneron</span></a> <a href="https://pubeurope.com/tags/Science" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Science</span></a> <a href="https://pubeurope.com/tags/UK" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UK</span></a> <a href="https://pubeurope.com/tags/UnitedKingdom" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnitedKingdom</span></a></p>
Flipboard Tech Desk<p>The U.S. government has collected DNA samples from upwards of 133,000 migrant children and teenagers and uploaded their genetic data into a national criminal database used by local, state, and federal law enforcement. Via a report from <span class="h-card" translate="no"><a href="https://flipboard.com/@WIRED" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>WIRED</span></a></span>. <a href="https://flipboard.social/tags/ICE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ICE</span></a> <a href="https://flipboard.social/tags/Immigration" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Immigration</span></a> <a href="https://flipboard.social/tags/GeneticData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticData</span></a> <a href="https://flipboard.social/tags/DNA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DNA</span></a> <a href="https://flipboard.social/tags/Privacy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Privacy</span></a> <a href="https://flipboard.social/tags/Tech" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Tech</span></a> <a href="https://flipboard.social/tags/Technology" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Technology</span></a> <a href="https://flip.it/EALFoQ" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">flip.it/EALFoQ</span><span class="invisible"></span></a></p>
Pyrzout :vm:<p>23andMe and its customers’ genetic data bought by a pharmaceutical org <a href="https://www.malwarebytes.com/blog/news/2025/05/23andme-and-its-customers-genetic-data-bought-by-a-pharmaceutical-org" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">malwarebytes.com/blog/news/202</span><span class="invisible">5/05/23andme-and-its-customers-genetic-data-bought-by-a-pharmaceutical-org</span></a> <a href="https://social.skynetcloud.site/tags/geneticdata" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>geneticdata</span></a> <a href="https://social.skynetcloud.site/tags/Regeneron" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Regeneron</span></a> <a href="https://social.skynetcloud.site/tags/Privacy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Privacy</span></a> <a href="https://social.skynetcloud.site/tags/23andMe" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23andMe</span></a> <a href="https://social.skynetcloud.site/tags/News" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>News</span></a></p>
UK<p><a href="https://www.europesays.com/uk/61486/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">europesays.com/uk/61486/</span><span class="invisible"></span></a> 23andMe will have court-appointed overseer for genetic data in bankruptcy <a href="https://pubeurope.com/tags/23andme" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23andme</span></a> <a href="https://pubeurope.com/tags/BrianWalsh" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>BrianWalsh</span></a> <a href="https://pubeurope.com/tags/CourtHearing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CourtHearing</span></a> <a href="https://pubeurope.com/tags/CustomerData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CustomerData</span></a> <a href="https://pubeurope.com/tags/GeneticData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticData</span></a> <a href="https://pubeurope.com/tags/Genetics" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Genetics</span></a> <a href="https://pubeurope.com/tags/Science" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Science</span></a> <a href="https://pubeurope.com/tags/UK" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UK</span></a> <a href="https://pubeurope.com/tags/UnitedKingdom" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UnitedKingdom</span></a></p>
Pyrzout :vm:<p>Your 23andMe genetic data could be bought by China, senator warns <a href="https://www.malwarebytes.com/blog/news/2025/04/your-23andme-genetic-data-could-be-bought-by-china-senator-warns" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">malwarebytes.com/blog/news/202</span><span class="invisible">5/04/your-23andme-genetic-data-could-be-bought-by-china-senator-warns</span></a> <a href="https://social.skynetcloud.site/tags/geneticdata" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>geneticdata</span></a> <a href="https://social.skynetcloud.site/tags/Privacy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Privacy</span></a> <a href="https://social.skynetcloud.site/tags/23andMe" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23andMe</span></a> <a href="https://social.skynetcloud.site/tags/Chinese" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Chinese</span></a> <a href="https://social.skynetcloud.site/tags/News" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>News</span></a></p>
Steve Dustcircle 🌹<p><a href="https://masto.ai/tags/23andMe" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23andMe</span></a> is potentially selling more than just <a href="https://masto.ai/tags/geneticdata" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>geneticdata</span></a> – the <a href="https://masto.ai/tags/personal" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>personal</span></a> survey info it collected is just as much a <a href="https://masto.ai/tags/privacy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>privacy</span></a> problem</p><p><a href="https://theconversation.com/23andme-is-potentially-selling-more-than-just-genetic-data-the-personal-survey-info-it-collected-is-just-as-much-a-privacy-problem-253220" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">theconversation.com/23andme-is</span><span class="invisible">-potentially-selling-more-than-just-genetic-data-the-personal-survey-info-it-collected-is-just-as-much-a-privacy-problem-253220</span></a></p>
Miguel Afonso Caetano<p>"This week, the genetic testing company 23andMe filed for bankruptcy, which means the genetic data the company collected on millions of users is now up for sale. If you do not want your data included in any potential sale, it’s a good time to ask the company to delete it.</p><p>When the company first announced it was considering a sale, we highlighted many of the potential issues, including selling that data to companies with poor security practices or direct links to law enforcement. With this bankruptcy, the concerns we expressed last year remain the same. It is unclear what will happen with your genetic data if 23andMe finds a buyer, and that uncertainty is a clear indication that you should consider deleting your data. California attorney general Rob Bonta agrees."</p><p><a href="https://www.eff.org/deeplinks/2025/03/how-delete-your-23andme-data" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">eff.org/deeplinks/2025/03/how-</span><span class="invisible">delete-your-23andme-data</span></a> </p><p><a href="https://tldr.nettime.org/tags/23AndMe" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23AndMe</span></a> <a href="https://tldr.nettime.org/tags/DNA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DNA</span></a> <a href="https://tldr.nettime.org/tags/Privacy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Privacy</span></a> <a href="https://tldr.nettime.org/tags/DataProtection" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DataProtection</span></a> <a href="https://tldr.nettime.org/tags/GeneticData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticData</span></a></p>
Flipboard Science Desk<p>On Sunday, the genetic testing and heritage company 23andMe announced that it had entered Chapter 11 bankruptcy and was asking a court to arrange its sale. <span class="h-card" translate="no"><a href="https://flipboard.com/@ArsTechnica" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>ArsTechnica</span></a></span> reports: <br><a href="https://arstechnica.com/science/2025/03/genetic-testing-company-23andme-declares-bankruptcy/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">arstechnica.com/science/2025/0</span><span class="invisible">3/genetic-testing-company-23andme-declares-bankruptcy/</span></a></p><p><a href="https://flipboard.social/tags/Genetics" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Genetics</span></a> <a href="https://flipboard.social/tags/23andMe" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23andMe</span></a> <a href="https://flipboard.social/tags/bankruptcy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>bankruptcy</span></a> <a href="https://flipboard.social/tags/GeneticData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticData</span></a></p>
Sebastian Büttrich @ ITU<p><a href="https://social.itu.dk/tags/23andme" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23andme</span></a> is getting ready to sell what s left (down to 11 million from 3.5 billion) - in capitalist newspeak "to Maximize Stakeholder Value Through Court-Supervised Sale Process" -</p><p>asking customers to delete their <a href="https://social.itu.dk/tags/DNA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DNA</span></a> now as it will be given away.</p><p>[german]</p><p><a href="https://www.heise.de/news/23andme-beantragt-Insolvenzschutz-zielt-auf-Verkauf-Hinweis-auf-Datenloeschung-10325684.html" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">heise.de/news/23andme-beantrag</span><span class="invisible">t-Insolvenzschutz-zielt-auf-Verkauf-Hinweis-auf-Datenloeschung-10325684.html</span></a></p><p>via <span class="h-card" translate="no"><a href="https://social.heise.de/@mho" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mho</span></a></span> <br><a href="https://social.itu.dk/tags/genetics" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>genetics</span></a> <a href="https://social.itu.dk/tags/geneticData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>geneticData</span></a></p>
Debby<p>The Risks of Genetic Data:<br> Dr. Abdul El-Sayed Discusses 23andMe's Breach Fallou.</p><p>deGoogleed link 🔗 <a href="https://invidious.jing.rocks/embed/sHnjTRXtbqs" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">invidious.jing.rocks/embed/sHn</span><span class="invisible">jTRXtbqs</span></a><br>Youtube link 🔗 <a href="https://youtu.be/sHnjTRXtbqs" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">youtu.be/sHnjTRXtbqs</span><span class="invisible"></span></a></p><p><a href="https://esperanto.masto.host/tags/GeneticData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticData</span></a> <a href="https://esperanto.masto.host/tags/Biosecurity" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Biosecurity</span></a><br><a href="https://esperanto.masto.host/tags/DataBreach" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DataBreach</span></a> <a href="https://esperanto.masto.host/tags/23andMe" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23andMe</span></a><br><a href="https://esperanto.masto.host/tags/Genetics" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Genetics</span></a> <a href="https://esperanto.masto.host/tags/PrivacyMatters" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PrivacyMatters</span></a><br><a href="https://esperanto.masto.host/tags/DataProtection" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DataProtection</span></a> <a href="https://esperanto.masto.host/tags/HealthTech" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>HealthTech</span></a><br><a href="https://esperanto.masto.host/tags/DrAbdulElSayed" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DrAbdulElSayed</span></a> <a href="https://esperanto.masto.host/tags/SafeguardingData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SafeguardingData</span></a></p>
Miguel Afonso Caetano<p><a href="https://tldr.nettime.org/tags/USA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>USA</span></a> <a href="https://tldr.nettime.org/tags/23andMe" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23andMe</span></a> <a href="https://tldr.nettime.org/tags/DNA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DNA</span></a> <a href="https://tldr.nettime.org/tags/Privacy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Privacy</span></a> <a href="https://tldr.nettime.org/tags/DataProtection" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DataProtection</span></a> <a href="https://tldr.nettime.org/tags/GeneticData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticData</span></a>: "23andMe must obtain consent from many users before transferring their data in an acquisition. Those users could simply refuse. At least a dozen states have passed consumer data privacy laws specific to genetic privacy. For example, Montana’s 2023 law would require consent to be separate from other documents and to list the buyer’s name. While the consent requirements vary slightly, similar laws exist in Alabama, Arizona, California, Kentucky, Nebraska, Maryland, Minnesota, Tennessee, Texas, Virginia, Utah, Wyoming. (...) </p><p>- Many users have the legal right to access and delete their data stored with 23andMe before or after an acquisition. About 19 states have comprehensive privacy laws which give users deletion and access rights. Many of those laws also classify genetic data as sensitive and require companies to obtain consent to process it. Unfortunately, most if not all of these laws allow companies like 23andMe to freely transfer user data as part of a merger, acquisition, or bankruptcy. </p><p>- 23andMe must comply with its own privacy policy. Otherwise, the company could be sanctioned for engaging in deceptive practices. Unfortunately, its current privacy policy allows for transfers of data in the event of a merger, acquisition, or bankruptcy. </p><p>- Any buyer of 23andMe would likely have to offer existing users privacy rights that are equal or greater to the ones offered now, unless the buyer obtains new consent. The Federal Trade Commission has warned companies not to engage in the unfair practice of quietly reducing privacy protections of user data after an acquisition. The buyer would also have to comply with the web of comprehensive and genetic-specific state privacy laws mentioned above. </p><p>- The federal Genetic Information Nondiscrimination Act of 2008 prevents genetic-based discrimination by health insurers and employers."</p><p><a href="https://www.eff.org/deeplinks/2024/10/sale-23andmes-data-would-be-bad-privacy-heres-what-customers-can-do" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">eff.org/deeplinks/2024/10/sale</span><span class="invisible">-23andmes-data-would-be-bad-privacy-heres-what-customers-can-do</span></a></p>
Miguel Afonso Caetano<p><a href="https://tldr.nettime.org/tags/GeneticData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticData</span></a> <a href="https://tldr.nettime.org/tags/GeneticDiscrimination" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticDiscrimination</span></a> <a href="https://tldr.nettime.org/tags/DataProtection" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DataProtection</span></a>: "Add it all together, and there’s a hell of a lot of genetic data out there.</p><p>It isn’t always clear how secure this data is, or who might end up getting their hands on it—and how that information might affect people’s lives. I don’t want my insurance provider or my employer to make decisions about my future on the basis of my genetic test results, for example. Scientists, ethicists and legal scholars aren’t clear on the matter either. They are still getting to grips with what genetic discrimination entails—and how we can defend against it.</p><p>If we're going to protect ourselves from genetic discrimination, we first have to figure out what it is. Unfortunately, no one has a good handle on how widespread it is..."</p><p><a href="https://www.technologyreview.com/2024/07/19/1095120/why-we-need-safeguards-against-genetic-discrimination/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">technologyreview.com/2024/07/1</span><span class="invisible">9/1095120/why-we-need-safeguards-against-genetic-discrimination/</span></a></p>
IT News<p>23andMe told victims of data breach that suing is futile, letter shows - Enlarge (credit: Bloomberg / Contributor | Bloomberg) </p><p>23andMe ... - <a href="https://arstechnica.com/?p=1993685" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">arstechnica.com/?p=1993685</span><span class="invisible"></span></a> <a href="https://schleuss.online/tags/personalidentifyinginformation" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>personalidentifyinginformation</span></a> <a href="https://schleuss.online/tags/californiaprivacyrightsact" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>californiaprivacyrightsact</span></a> <a href="https://schleuss.online/tags/credentialstuffing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>credentialstuffing</span></a> <a href="https://schleuss.online/tags/onlineprivacy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>onlineprivacy</span></a> <a href="https://schleuss.online/tags/ancestrydata" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ancestrydata</span></a> <a href="https://schleuss.online/tags/geneticdata" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>geneticdata</span></a> <a href="https://schleuss.online/tags/databreach" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>databreach</span></a> <a href="https://schleuss.online/tags/23andme" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23andme</span></a> <a href="https://schleuss.online/tags/policy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>policy</span></a></p>
SubtleBlade ⚔️<p>'Academic paper based on <a href="https://mastodon.scot/tags/Uyghur" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Uyghur</span></a> <a href="https://mastodon.scot/tags/GeneticData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticData</span></a> retracted over <a href="https://mastodon.scot/tags/EthicalConcerns" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>EthicalConcerns</span></a></p><p>Exclusive: Study published in 2019 used blood and saliva samples from 203 Uyghur and <a href="https://mastodon.scot/tags/Kazakh" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Kazakh</span></a> people living in Xinjiang capital'<br> <a href="https://www.theguardian.com/world/2023/dec/29/academic-paper-uyghur-genetic-data-retracted-ethical-concerns" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theguardian.com/world/2023/dec</span><span class="invisible">/29/academic-paper-uyghur-genetic-data-retracted-ethical-concerns</span></a></p>
beSpacific<p>GSK Plc will pay <a href="https://newsie.social/tags/23andMe" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>23andMe</span></a> Holding Co. $20M for <a href="https://newsie.social/tags/GeneticTesting" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>GeneticTesting</span></a> company’s vast <a href="https://newsie.social/tags/trove" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>trove</span></a> of <a href="https://newsie.social/tags/consumer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>consumer</span></a> <a href="https://newsie.social/tags/DNAData" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DNAData</span></a>, extending a 5 yr collaboration that’s allowed the <a href="https://newsie.social/tags/drugmaker" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>drugmaker</span></a> to mine <a href="https://newsie.social/tags/geneticdata" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>geneticdata</span></a> as it researches new <a href="https://newsie.social/tags/medications" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>medications</span></a>. Under the new agreement, 23andMe will provide GSK with one year of access to anonymized <a href="https://newsie.social/tags/DNA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DNA</span></a> data from the approximately 80% of gene-testing customers who have agreed to share their information for research. Really? <a href="https://newsie.social/tags/privacy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>privacy</span></a> <a href="https://newsie.social/tags/medicine" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>medicine</span></a> <a href="https://newsie.social/tags/healthcare" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>healthcare</span></a> <a href="https://www.bloomberg.com/news/articles/2023-10-30/23andme-will-give-gsk-access-to-consumer-dna-data" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">bloomberg.com/news/articles/20</span><span class="invisible">23-10-30/23andme-will-give-gsk-access-to-consumer-dna-data</span></a></p>
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