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#micromom

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Jessi

It's been awhile since I took the kids to a 'child casino'. 😆

I wasn't quite sure how they'd react, given the immense sensory overload. They 💕 noise. Sometimes. 🙃

This adventure they didn't want to play but rather roam the aisles. At one point, I thought Jake was overwhelmed. He took over Julia's wheelchair and started to run for the exit. But no... he just wanted to race push her through the maze of it all. I didn't think I'd get them out.

Jake standing at the front of the arcade. It's a dark but brightly lit environment full of various games. He's standing with a curious look on his face as he is thinking about what to do first. The carpet is a shiny blue. In the background of the photo is a different part of the mall, a shoe store.
Jake pushing Julia in the wheelchair. He seemed to be fascinated by this game. The spin and win - a giant colorful wheel.
Jake pushing Julia through the aisles as he navigates a corner turn. There is a food and drink concession stand in the background. Julia was also excited to see other kids in wheelchairs so while she might have been upset about the large amount of noise and stimulation, she started to calm down once she saw kids like herself. This typically happens.
Jake continuing to check out the play area. There are rows of arcade machines and a party room in the photo.
#explore_joy#micromom#loveis
Public
Jessi

Local.

Reminder about the 5K race coming up for those who are interested. Oct. 29th

I'm not going to be able to attend but both of my kids have received toys and love during their hospital stays at Wesley through this program.

❤️Small things are meaningful.❤️

Jake and Julia were 16 weeks premature. 111 days in the NICU. ~But that was only the beginning of a very complicated lifestyle as micro-preemie survivors.

lexislamb.org/index.html

runsignup.com/Race/KS/Wichita/

Screenshot from the home page of Lexi's Lamb foundation. Green background with pink.
Public
Jessi

October, already?! 😎 🍂

As an adventurer, it's hard to stay indoors during this time of year because the weather here in Kansas is gorgeous. But as a writer, the hashtag prompt challenges make life interesting.

Love the undiscovered talent here! ❤️


And continuing contributions:



September thread links: toad.social/@chameleon_muse/11

toad.social/@chameleon_muse/11

toad.social/@chameleon_muse/11

Sunflowers and prairie grass with a shimmering gentle lake in the background. I'm continually looking for ways to improve SM experiences for multidisciplinary artists and advocates whose message is lost to the vast sea of 'alternative' misinformation. Mastodon is unique and provides the least amount of interference from outside parties and individuals. Yet it's not perfect. A work in progress, which is okay! Lots of friendly helpful people here. Over the last year I've been studying and adapting Mastodon to fit my unique SM needs as a parent and a writer who does not have a 'tech' background. Lately I've been trying to maximize the communication space in each post. The alternative text section provides an enormous amount of character space in order to provide additional context information. Not only does it assist those with visual deficiencies, but it also provides a way to enhance communication.
Continued thread
Public
Jessi

For us, it wasn't the last time we were in a hospital.

Communication disorders, physical and intellectual disabilities may bring additional life challenges, but some things are clear to see. They may be considered blind but I am not.

Jake and Julia at age three, being reunited after a long hospital stay separated them.
#micromom#love
Public
Jessi

Yesterday was definitely an odd smoky day. This video captures an authentic view because I was outside in many parts of the city - so I had a large-scale view and trying to explain it to others was difficult.

We see a lot of unique weather and socio-environmental challenges here in Kansas but it was so eerie. Really put a damper on activities but also the kids have chronic lung issues from their prematurity so another factor I have to consider.

kake.com/story/49601814/doctor

Public
Jessi

Jake is doing fine. We did have one small, unexpected adventure today. Julia's medical clearance forms for playing Supercolts basketball (high school disability league) came in. There were additional checks necessary due to her medical conditions. So we got to visit the school district's new health clinic. Which I love. 😍

Having accessible medical care within a familiar structure, really helps kids and families.

usd261.com/sbhc/

Jake impatiently trying to open a locked door. He's wearing a blue shirt. The doors are a pale cream color.
Jake reading a book being patient while we wait for the forms. All these books were donated by the community. I'm very proud that so many parents and people have stepped up to provide comfort and support to kids as we try to heal and move forward from COVID. It's not nearly mentioned enough in the media but every day people help others and solve problems.
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