toad.social

2 posts2 participants0 posts today

The BirdHow is everyone feeling? Is there any activism happening in the Disabled Sphere?How can we better support one another? What ways can we make protests more accessible? These are questions I've been thinking about lately. It's why I'm working on the collective access zine. (It's almost finished!) <a href="https://disabled.social/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NEISvoid</a> <a href="https://disabled.social/tags/Disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Disabled</a> <a href="https://disabled.social/tags/DisabledSocial" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DisabledSocial</a> <a href="https://disabled.social/tags/Disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Disability</a> <a href="https://disabled.social/tags/Activism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Activism</a>

TheBirdHaving migraines and chronic illness flare-ups has been brutal. However, I still managed to update the Shared Moments: Book 4: <a href="https://archiveofourown.org/works/59837869/chapters/165907621" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://archiveofourown.org/works/59837869/chapters/165907621</a> <a href="https://ni.hil.ist/tags/Korrasami" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Korrasami</a> <a href="https://ni.hil.ist/tags/FanFiction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FanFiction</a> It took me months due to how sick I've been. Writing is my main mode of coping, and when I can't use it to cope, I struggle with despair. So to finally finish that chapter and push it out to <a href="https://ni.hil.ist/tags/AO3" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AO3</a> ? What a relief.I just need to find a new balance with my health, my writing, my coping, my activism, and my resting. Ugh, it feels overwhelming when I write it out like that. <a href="https://ni.hil.ist/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicallyIll</a> <a href="https://ni.hil.ist/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NEISvoid</a>

Just JenENote to self: When gardening with Trigeminal Neuralgia, don't forget that chances are there's more dirt on your face than in the planters from rubbing mid spasms. Look in a mirror before going to town! 🫠<a href="https://mstdn.ca/tags/Oops" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Oops</a> <a href="https://mstdn.ca/tags/TNWARRIOR" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#TNWARRIOR</a> <a href="https://mstdn.ca/tags/chronicpain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicpain</a> <a href="https://mstdn.ca/tags/Monday" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Monday</a> <a href="https://mstdn.ca/tags/neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neisvoid</a>

Just JenEI have discovered that in my journey to learn ASL with my family, in order to deal with my selective mutism, my children and I have learned *So Many* ways to swear. I'm not sure if we should be proud or not 🤔🫠 <a href="https://mstdn.ca/tags/TNWARRIOR" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#TNWARRIOR</a> <a href="https://mstdn.ca/tags/TrigeminalNeuralgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#TrigeminalNeuralgia</a> <a href="https://mstdn.ca/tags/parenting" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#parenting</a> <a href="https://mstdn.ca/tags/NEISVOID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NEISVOID</a> <a href="https://mstdn.ca/tags/chronicpain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicpain</a>

AnnaIn case it was missed in the post above, this is my updated article:👉 <a href="https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/</a>My doctor predicts I will die if I don’t leave soon. I need a solid, safe, home I can go to and recover to at least a stable baseline. It’s not full recovery, but it’s better than a slow death.Help please 🙏 <a href="https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/</a><a href="https://aus.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://aus.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://aus.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://aus.social/tags/Hypothyroidism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Hypothyroidism</a> <a href="https://aus.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllness</a> <a href="https://aus.social/tags/Neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Neisvoid</a> <a href="https://aus.social/tags/Abuse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Abuse</a> <a href="https://aus.social/tags/Housing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Housing</a> <a href="https://aus.social/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Dysautonomia</a> <a href="https://aus.social/tags/SocialWork" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SocialWork</a> <a href="https://aus.social/tags/MedMastodon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MedMastodon</a> <a href="https://aus.social/tags/PWLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PWLC</a> <a href="https://aus.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MutualAid</a> <a href="https://aus.social/tags/HumanRights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HumanRights</a> <a href="https://aus.social/tags/Press" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Press</a> <a href="https://aus.social/tags/Housing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Housing</a> <a href="https://aus.social/tags/Journalism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Journalism</a> <a href="https://aus.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://aus.social/tags/SevereME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SevereME</a> <a href="https://aus.social/tags/Abuse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Abuse</a> <a href="https://aus.social/tags/Neglect" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Neglect</a> <a href="https://aus.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MutualAid</a> <a href="https://aus.social/tags/Narcissist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Narcissist</a> <a href="https://aus.social/tags/Psychopath" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Psychopath</a> <a href="https://aus.social/tags/Endometriosis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Endometriosis</a> <a href="https://aus.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicPain</a> <a href="https://aus.social/tags/CostOfLivingCrisis" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CostOfLivingCrisis</a> <a href="https://aus.social/tags/Melbourne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Melbourne</a> <a href="https://aus.social/tags/Australia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Australia</a> <a href="https://aus.social/tags/DomesticAbuse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DomesticAbuse</a> <a href="https://aus.social/tags/DV" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#DV</a><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://a.gup.pe/u/neisvoid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@neisvoid</a> <a href="https://a.gup.pe/u/disabilityjustice" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disabilityjustice</a> <a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disability</a> <a href="https://a.gup.pe/u/socialwork" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@socialwork</a> <a href="https://a.gup.pe/u/dysautonomia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@dysautonomia</a> <a href="https://a.gup.pe/u/mutualaid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mutualaid</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/chronicpain" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicpain</a> <a href="https://a.gup.pe/u/mcas" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mcas</a> <a href="https://a.gup.pe/u/australia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@australia</a> <a href="https://a.gup.pe/u/melbourne" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@melbourne</a>

Ashley HalliwellOne (1) cripplepunk baked potato, reporting for duty.Both eyes were meant to be closed in this picture. 🤣I have been bribed with sushi and caffeine to make this trip, but I wanted to go anyway.-Allēna#stoner #NEISvoid #chronicpain #chronicillness #selfie #queerselfie #nonbinary<a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://opensorceryy.co/tag/chronicillness/" target="_blank">#chronicillness</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://opensorceryy.co/tag/chronicpain/" target="_blank">#ChronicPain</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://opensorceryy.co/tag/neisvoid/" target="_blank">#NEISvoid</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://opensorceryy.co/tag/nonbinary/" target="_blank">#nonbinary</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://opensorceryy.co/tag/queerselfie/" target="_blank">#queerselfie</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://opensorceryy.co/tag/selfie/" target="_blank">#selfie</a> <a rel="nofollow noopener noreferrer" class="hashtag u-tag u-category" href="https://opensorceryy.co/tag/stoner/" target="_blank">#stoner</a>

AnnaPLEASE HELP ME ESCAPE!Please <a href="https://aus.social/tags/boost" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#boost</a> and share to other platforms.🙏I don’t have energy left (see below).Seems I’m famous (and real!) and desperate enough to go to the media for help. Yes, the trapped woman in the articles below is me.👉Last year: <a href="https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.thecanary.co/global/world-analysis/2024/05/03/me-cfs-anna-australia/</a>Now things are worse, I’m much sicker, being neglected and will die without a safe stable <a href="https://aus.social/tags/home" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#home</a>. Doctor’s words.If not mentioned in the article, my father is a diagnosed <a href="https://aus.social/tags/narcissist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#narcissist</a> with <a href="https://aus.social/tags/psychopathic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#psychopathic</a> & <a href="https://aus.social/tags/antisocial" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#antisocial</a> tendencies by a <a href="https://aus.social/tags/psychiatrist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#psychiatrist</a>. He urged me get away from my father asap because he is not a ‘safe person’ & neither are the other family members who lured me back through the promise of help.They didn’t help they made me progressively worse to the point of almost incapacitation at stage of <a href="https://aus.social/tags/illness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#illness</a>.👉A year later: <a href="https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/</a>I’ve tried every level of government, every service and they simply won’t help. Are able help? Please ask people in real life if they have somewhere for me to go. Could they take me in (I can pay small rent)? A lot people have ‘big house, not enough money’ problem. I can help!Is anybody an <a href="https://aus.social/tags/advocate" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#advocate</a>? I desperately need help. I would be incredibly grateful for any help beyond words.🙏Please read articles for full information.Thank you for reading.<a href="https://aus.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> <a href="https://aus.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://aus.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://aus.social/tags/Hypothyroidism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Hypothyroidism</a> <a href="https://aus.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllness</a> <a href="https://aus.social/tags/Neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Neisvoid</a> <a href="https://aus.social/tags/Abuse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Abuse</a> <a href="https://aus.social/tags/Housing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Housing</a> <a href="https://aus.social/tags/Dysautonomia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Dysautonomia</a> <a href="https://aus.social/tags/SocialWork" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SocialWork</a> <a href="https://aus.social/tags/MedMastodon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MedMastodon</a> <a href="https://aus.social/tags/PWLC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PWLC</a> <a href="https://aus.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MutualAid</a> <a href="https://aus.social/tags/HumanRights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HumanRights</a> <a href="https://aus.social/tags/Press" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Press</a> <a href="https://aus.social/tags/Housing" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Housing</a> <a href="https://aus.social/tags/Journalism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Journalism</a> <a href="https://aus.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://aus.social/tags/SevereME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#SevereME</a> <a href="https://aus.social/tags/Abuse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Abuse</a> <a href="https://aus.social/tags/Neglect" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Neglect</a> <a href="https://aus.social/tags/MutualAid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MutualAid</a> <a href="https://aus.social/tags/Narcissist" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Narcissist</a> <a href="https://aus.social/tags/Psychopath" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Psychopath</a>

RhyothemisI thought I might be getting migraines after using stevia to make lemonade. I stopped using it and forgot about until today when I was looking into something about POTS and came across a reddit thread about Promix as an alternative to LMNT electrolyte drink. Apparently, stevia can cause vasodilation. LMNT contains stevia, but Promix doesn't. Also, LMNT's owners support RFK Jr 🙄 Promix has some other ingredients, though, that I'm not sure about for my daughter, since she has allergies.<a href="https://www.reddit.com/r/POTS/comments/1jnt71h/psa_i_found_an_lmnt_alternative_with_the_same/" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.reddit.com/r/POTS/comments/1jnt71h/psa_i_found_an_lmnt_alternative_with_the_same/</a><a href="https://zeroes.ca/tags/Migraine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Migraine</a> <a href="https://zeroes.ca/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#POTS</a> <a href="https://zeroes.ca/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NEISvoid</a>

Just JenEShout out to my friends, who when trying to communicate with me via <a href="https://mstdn.ca/tags/ASL" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ASL</a>, notepads, and a few slurred words, will continue conversation without missing a beat as if I was speaking all out loud and clear.My tribe brings me strength. <a href="https://mstdn.ca/tags/TNWARRIOR" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#TNWARRIOR</a> <a href="https://mstdn.ca/tags/TrigeminalNeuralgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#TrigeminalNeuralgia</a> <a href="https://mstdn.ca/tags/chronicpain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicpain</a> <a href="https://mstdn.ca/tags/mute" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#mute</a> <a href="https://mstdn.ca/tags/NEISVOID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NEISVOID</a>

Sheru (she/her)Pain flares always leave me so wrung out. And more often than not, weepy and emotional.Even when I have someone actively helping and taking care of me,it's so hard and isolating. And a bit scary if I'm being real.Just feeling like one huge raw, exposed nerve right now.<a href="https://wandering.shop/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicPain</a> <a href="https://wandering.shop/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NEISvoid</a>

AnyaToday is a "very loudly swearing to myself as I try to move, and my body reminds that it is painful to do that" kind of day.<a href="https://eldritch.cafe/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NEISvoid</a> <a href="https://eldritch.cafe/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://eldritch.cafe/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> etc

AnyaHad a nightmare, startled "awake" into another smaller nightmare, actually woke up.Exhausted, not sleeping very well, want to go back to sleep Brain won't slow down after the double adrenaline shot.Decide to check my emails, see a response by the government to the petition asking for Self ID to be brought in, it has been denied again and they've flat out said it'll never be brought in under this government.So now that's on my brain, too.I'm in pain, big shocker there, everything hurts, and I want that to stop. Pissed off that the highest dose of pregabalin still does nothing for me, so I'm having to taper myself off before being able to try anything else.Which is immediately reminding me of my GP surgery absolutely cocking up my appointments recently, causing a clash and making me miss the appointment to discuss next steps with my GP.So that's on my mind too.But on the plus side, Assassin's Creed Shadows is out today and so as I waste my adult life stuck in bed or stuck in my house, at least I get to stealth kill my frustrations away into the void and pretend that I'm in some way contributing to the continued fight for the freedoms & dignity of the minorities being failed by almost every nation.Because it's either that or give up, and stare at a wall.<a href="https://eldritch.cafe/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NEISvoid</a> <a href="https://eldritch.cafe/tags/UKpol" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#UKpol</a> <a href="https://eldritch.cafe/tags/TransRights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#TransRights</a>

The BirdFor those whose disability makes it hard to write your own Alt-Text, the altbot is now privacy-centered, which means none of your data is leaking to unscrupulous cooperations.I still think it's better and less prone to error when humans write Alt-Text, but it's nice to know this exists. <a href="https://disabled.social/tags/AltText" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#AltText</a> <a href="https://disabled.social/tags/accessibility" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#accessibility</a> <a href="https://disabled.social/tags/disabled" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disabled</a> <a href="https://disabled.social/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NEISvoid</a> post link:🔗 <a href="https://fuzzies.wtf/users/micr0/statuses/114172532499348433" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://fuzzies.wtf/users/micr0/statuses/114172532499348433</a>

AnyaI have been in absolute agony all day, and nothing I do is stopping it.<a href="https://eldritch.cafe/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#fibromyalgia</a> <a href="https://eldritch.cafe/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NEISvoid</a> <a href="https://eldritch.cafe/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a>

Tom Kindlon(US) Telehealth UpdateImage from Massachusetts ME/CFS & FM Association March 2025 e-newsletter: <a href="https://massmecfs.org/newsletters/919-2025-03-march-newsletter" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://massmecfs.org/newsletters/919-2025-03-march-newsletter</a><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disability</a> <a href="https://disabled.social/tags/neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neisvoid</a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chroniclife</a> <a href="https://disabled.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicPain</a> <a href="https://disabled.social/tags/Spoonielife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonielife</a> <a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#hiddenillness</a> <a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#invisibleillness</a> <a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllnesses</a> <a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonies</a> <a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicallyIll</a> <a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@longcovid</a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#LongCovid</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a>

AnyaStarting to find the bruises on my body from falling over the other day.Each one is met with a moment of "What the heck is tha-oh, yeah."<a href="https://eldritch.cafe/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://eldritch.cafe/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NEISvoid</a> <a href="https://eldritch.cafe/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://eldritch.cafe/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#POTS</a> <a href="https://eldritch.cafe/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MECFS</a> <a href="https://eldritch.cafe/tags/EDS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#EDS</a>

Belle (she/her)Time for my favorite <a href="https://kind.social/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicPain</a> trick: it can’t hurt me if I am unconscious! <a href="https://kind.social/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NEISvoid</a>

Tom Kindlon🧵 "Chronic diseases misdiagnosed as psychosomatic can lead to long term damage to physical & mental wellbeing, study finds"<a href="https://www.eurekalert.org/news-releases/1074887" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.eurekalert.org/news-releases/1074887</a>Research on people with autoimmune diseases but people with other conditions will sadly be able to relate<a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@chronicillness</a> <a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@spoonies</a> <a href="https://disabled.social/tags/neisvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#neisvoid</a> <a href="https://disabled.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chronicillness</a> <a href="https://disabled.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#chroniclife</a> <a href="https://disabled.social/tags/hiddenillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#hiddenillness</a> <a href="https://disabled.social/tags/invisibleillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#invisibleillness</a> <a href="https://disabled.social/tags/ChronicIllnesses" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicIllnesses</a> <a href="https://disabled.social/tags/Spoonies" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonies</a> <a href="https://disabled.social/tags/Spoonie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Spoonie</a> <a href="https://disabled.social/tags/ChronicallyIll" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#ChronicallyIll</a> <a href="https://a.gup.pe/u/lupus" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@lupus</a> <a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mecfs</a> <a href="https://a.gup.pe/u/fibromyalgia" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@fibromyalgia</a> <a href="https://disabled.social/tags/Fibromyalgia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibromyalgia</a> <a href="https://disabled.social/tags/Fibro" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#Fibro</a> <a href="https://disabled.social/tags/FMS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FMS</a> <a href="https://disabled.social/tags/FM" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#FM</a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MEcfs</a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#CFS</a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#PwME</a> 1/

Chris "Not So" ShortAfter 3 weeks of @Meijer playing games w/ my key pain med, I'm done and yanking everything out. The service was okay until I needed to travel (I do that) then everything fell apart. I spent over $300 (normally $30), so I don't go through withdrawal due to ineptitude. <a href="https://hachyderm.io/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NEISvoid</a>

Taco BlaccHome from the hospital, now navigating what little assistance remains in the US with additional ailments and need survival funds in the meantime. Food, electricity, plus need to get internet set back up so I can stay in steady communication with the world (and also not be bored).<a href="https://a.gup.pe/u/mutualaid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mutualaid</a> <a href="https://starflower.space/@mutual_aid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@mutual_aid</a> <a href="https://mastodon.social/@MutualAidVisibility" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@MutualAidVisibility</a> <a href="https://a.gup.pe/u/disability" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@disability</a> <a href="https://a.gup.pe/u/blackmastodon" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@blackmastodon</a> <a href="https://ko-fi.com/bpsycho" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://ko-fi.com/bpsycho</a> <a href="https://www.paypal.me/longbongsilver" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://www.paypal.me/longbongsilver</a> <a href="https://Cash.app/longbongsilver" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://Cash.app/longbongsilver</a> <a href="https://venmo.com/u/longbongsilver" rel="nofollow noopener noreferrer" translate="no" target="_blank">https://venmo.com/u/longbongsilver</a><a href="https://kolektiva.social/tags/MutualAidRequest" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#MutualAidRequest</a> <a href="https://kolektiva.social/tags/disabilitycrowdfund" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disabilitycrowdfund</a> <a href="https://kolektiva.social/tags/disabledmastodon" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#disabledmastodon</a> <a href="https://kolektiva.social/tags/HelpFolksLive2025" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#HelpFolksLive2025</a> <a href="https://kolektiva.social/tags/blackmutualaid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#blackmutualaid</a> <a href="https://kolektiva.social/tags/showupforwishes" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#showupforwishes</a> <a href="https://kolektiva.social/tags/NEISvoid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#NEISvoid</a>

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