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#carers

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Richard Michael Blaber<p><a href="https://www.theguardian.com/society/2025/jul/05/young-carer-amazed-as-guardian-readers-pay-off-her-2000-fine-for-benefit-rules-mistake" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theguardian.com/society/2025/j</span><span class="invisible">ul/05/young-carer-amazed-as-guardian-readers-pay-off-her-2000-fine-for-benefit-rules-mistake</span></a>. Rose Jones, aged 22, should never have been fined £2,145 in the first place. It should not have taken readers of the <span class="h-card" translate="no"><a href="https://flipboard.social/@guardian" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>guardian</span></a></span> to pay an absurd fine imposed by the inhumane, bureaucratic monstrosity that is the DWP, just because of her trifling mistake. They are strangers to empathy &amp; compassion, &amp; enemies of <a href="https://mastodon.social/tags/carers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>carers</span></a>, as well as <a href="https://mastodon.social/tags/disabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disabled</span></a> people.</p>
Opinion | The Guardian US<p>Carers like me connect patients and doctors – so why are we so often made to feel invisible? | Emily Kenway <a href="https://www.theguardian.com/commentisfree/2025/jun/30/carers-patients-doctors-feel-invisible-health" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theguardian.com/commentisfree/</span><span class="invisible">2025/jun/30/carers-patients-doctors-feel-invisible-health</span></a> <a href="https://halo.nu/tags/Socialcare" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Socialcare</span></a> <a href="https://halo.nu/tags/Doctors" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Doctors</span></a> <a href="https://halo.nu/tags/Society" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Society</span></a> <a href="https://halo.nu/tags/Carers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Carers</span></a> <a href="https://halo.nu/tags/Health" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Health</span></a> <a href="https://halo.nu/tags/UKnews" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>UKnews</span></a></p>
Opinion | The Guardian US<p>As a carer, I’m not special – but sometimes I need to be reminded how important my role is | Natasha Sholl <a href="https://www.theguardian.com/society/commentisfree/2025/jun/27/as-a-carer-im-not-special-but-sometimes-i-need-to-be-reminded-how-important-my-role-is" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theguardian.com/society/commen</span><span class="invisible">tisfree/2025/jun/27/as-a-carer-im-not-special-but-sometimes-i-need-to-be-reminded-how-important-my-role-is</span></a> <a href="https://halo.nu/tags/Parentsandparenting" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Parentsandparenting</span></a> <a href="https://halo.nu/tags/Carers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Carers</span></a> <a href="https://halo.nu/tags/Cancer" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Cancer</span></a> <a href="https://halo.nu/tags/Health" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Health</span></a> <a href="https://halo.nu/tags/Family" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Family</span></a> <a href="https://halo.nu/tags/Health" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Health</span></a></p>
Emeritus Prof Christopher May<p>More and more cases are going to be getting publicity (like the Horizon scandal) as more and more carers realise that the DWP is harassing carers across the country - they likely no longer feel so isolated by the clawback demands.</p><p>I've said it before, but I'll say it again; the DWP needs to be stopped, and carers been to be valued not treated as fraudsters &amp; criminals - the DWP must be changed &amp; that change must be comprehensive - top to bottom!</p><p><a href="https://zirk.us/tags/carers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>carers</span></a> <a href="https://zirk.us/tags/DWP" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DWP</span></a> <a href="https://zirk.us/tags/politics" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>politics</span></a> <br><a href="https://www.theguardian.com/society/2025/jun/16/carers-allowance-woman-who-won-case-against-dwp-calls-for-end-to-sickening-harassment" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theguardian.com/society/2025/j</span><span class="invisible">un/16/carers-allowance-woman-who-won-case-against-dwp-calls-for-end-to-sickening-harassment</span></a></p>
Emeritus Prof Christopher May<p>So, one part of the DWP advises a young carer to join the Kickstart scheme because it wouldn't affect her carers' allowance, only subsequently got be subjected to a clawback of benefits due to the allowance paid on the scheme.</p><p>The inhumanity towards carers reaches a new low - suckering them into the very situation that exposes them to DWP's callous approach to accidental over-payment.</p><p>The DWP must be held to account for this sh*tshow!</p><p><a href="https://zirk.us/tags/carers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>carers</span></a> <a href="https://zirk.us/tags/DWP" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DWP</span></a> <a href="https://zirk.us/tags/politics" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>politics</span></a> </p><p><a href="https://www.theguardian.com/society/2025/jun/15/young-carer-unwittingly-breached-allowance-rules-told-to-repay" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theguardian.com/society/2025/j</span><span class="invisible">un/15/young-carer-unwittingly-breached-allowance-rules-told-to-repay</span></a></p>
Centre for Population Change<p>🔖 NEW article</p><p>Older adults who struggle with daily tasks are more likely to have depressive symptoms, esp. if they experience loneliness or difficulties accessing care, so timely access to <a href="https://sciences.social/tags/socialcare" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>socialcare</span></a> and tackling loneliness could help later life <a href="https://sciences.social/tags/mentalhealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mentalhealth</span></a></p><p><a href="https://onlinelibrary.wiley.com/doi/10.1155/hsc/8867042" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">onlinelibrary.wiley.com/doi/10</span><span class="invisible">.1155/hsc/8867042</span></a></p><p><a href="https://sciences.social/tags/ageing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ageing</span></a> <a href="https://sciences.social/tags/gerontology" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>gerontology</span></a> <a href="https://sciences.social/tags/socialscience" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>socialscience</span></a> <a href="https://sciences.social/tags/caring" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>caring</span></a> <a href="https://sciences.social/tags/carers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>carers</span></a> <a href="https://sciences.social/tags/unpaidcare" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>unpaidcare</span></a></p>
AutisticMumTo3 She/Her or They/Them<p>DWP PIP changes will hit carers with a £650 million cut every year <a href="https://www.thecanary.co/uk/analysis/2025/05/31/dwp-pip-carers-cuts/" rel="nofollow noopener" target="_blank">www.thecanary.co/uk/analysis/...</a> <a class="hashtag" rel="nofollow noopener" href="https://bsky.app/search?q=%23DWP" target="_blank">#DWP</a> <a class="hashtag" rel="nofollow noopener" href="https://bsky.app/search?q=%23PIP" target="_blank">#PIP</a> <a class="hashtag" rel="nofollow noopener" href="https://bsky.app/search?q=%23CarersAllowance" target="_blank">#CarersAllowance</a> <a class="hashtag" rel="nofollow noopener" href="https://bsky.app/search?q=%23Carers" target="_blank">#Carers</a><br><br><a href="https://www.thecanary.co/uk/analysis/2025/05/31/dwp-pip-carers-cuts/" rel="nofollow noopener" target="_blank">5.7 million unpaid carers save...</a></p>
OsteoarthriticAutistic<p>DWP PIP changes will hit carers with a £650 million cut every year<br> <a href="https://www.thecanary.co/uk/analysis/2025/05/31/dwp-pip-carers-cuts/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">thecanary.co/uk/analysis/2025/</span><span class="invisible">05/31/dwp-pip-carers-cuts/</span></a></p><p><a href="https://disabled.social/tags/DWP" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DWP</span></a><br><a href="https://disabled.social/tags/PIP" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PIP</span></a><br><a href="https://disabled.social/tags/CarersAllowance" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CarersAllowance</span></a> <br><a href="https://disabled.social/tags/Carers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Carers</span></a></p>
Peter J Fullagar 🌈<p>I'm so proud of my friend, Dr Anna Vaught, for initiating the <a href="https://social.vivaldi.net/tags/CuraePrize" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CuraePrize</span></a> – a <a href="https://social.vivaldi.net/tags/Writing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Writing</span></a> prize just for writers who are also <a href="https://social.vivaldi.net/tags/Carers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Carers</span></a>.</p><p>This year's winners have just been announced, and will feature in an anthology to be published by <a href="https://social.vivaldi.net/tags/RenardPress" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RenardPress</span></a>.</p><p><a href="https://social.vivaldi.net/tags/Poetry" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Poetry</span></a> <a href="https://social.vivaldi.net/tags/Fiction" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Fiction</span></a> <a href="https://social.vivaldi.net/tags/NonFiction" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NonFiction</span></a></p><p><a href="https://thecuraeprize.uk" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">thecuraeprize.uk</span><span class="invisible"></span></a></p>
the roamerCarers, Disability, Empathy, Ed Davey. A fine piece by John Harris.
Juggling With Eggs<p>‘The carer’s allowance scandal – because of which 144,000 carers are repaying more than £251m – continues to claim victims and will do so for the immediate future as the DWP works its way through thousands of backlogged overpayments.’</p><p>“In any sort of ethical world, this would not happen.”</p><p>The <a href="https://mstdn.social/tags/DWP" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>DWP</span></a> ignored whistleblowers and continued to fine and prosecute <a href="https://mstdn.social/tags/carers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>carers</span></a>. </p><p><a href="https://www.theguardian.com/news/ng-interactive/2025/may/24/something-has-gone-very-wrong-how-the-carers-scandal-was-exposed" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theguardian.com/news/ng-intera</span><span class="invisible">ctive/2025/may/24/something-has-gone-very-wrong-how-the-carers-scandal-was-exposed</span></a></p>
Emeritus Prof Christopher May<p>Overpayments of carer's allowance (paid over months) that the DWP tries to claw back as lump sums, seem to have been running at over £50m a year for the last six years &amp; its largely the DWP's fault for letting overpayments continue for too long even when they'd been notified that payments should have been stopped.</p><p>As always its a tale of badly used technology &amp; staff cuts, but carers lives have been made miserable because the DWP couldn't do its job properly!</p><p><a href="https://zirk.us/tags/carers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>carers</span></a> <br><a href="https://www.theguardian.com/society/2025/may/19/at-least-357m-in-carers-allowance-paid-out-in-error-over-past-six-years-charity-finds" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theguardian.com/society/2025/m</span><span class="invisible">ay/19/at-least-357m-in-carers-allowance-paid-out-in-error-over-past-six-years-charity-finds</span></a></p>
Matteo Cesari

Concerns about the approval of #lecanemab for Alzheimer’s disease

"...We are concerned about the approval of this #drug with uncertain net benefit that might foster false hope and expectations among people with #Alzheimer’s disease and their #carers and which might further overburden already overstretched #healthcare systems in Europe..."

#Medicine #Health #Geriatrics #Neurology #Care #MedMastodon

bmj.com/content/389/bmj.r778

The BMJ · Concerns about the approval of lecanemab for Alzheimer’s diseaseThe European Medicines Agency (EMA), after initial rejection based on an unfavourable risk-benefit balance, recently recommended approval of lecanemab for treating people with mild cognitive impairment and early dementia because of Alzheimer’s disease.1 This approval raises serious concerns for four reasons. Firstly, the reported difference between intervention and placebo in the primary outcome, the clinical dementia rating scale-sum of boxes (CDR-SB), was small (0.45 points) in a mixed group with mild cognitive impairment and …
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