toad.social is one of the many independent Mastodon servers you can use to participate in the fediverse.
Mastodon server operated by David Troy, a tech pioneer and investigative journalist addressing threats to democracy. Thoughtful participation and discussion welcome.

Administered by:

Server stats:

274
active users

#pda

2 posts2 participants1 post today

I wrote almost 3500 words on Monday and Tuesday, and apparently that all the words that I will ever have within my brain because I can't even look at this essay long enough to just add references without wanting to kms.

#uni #Academia #Criminology #CriminalJustice #university #writing #audhd #autism #adhd #disability #pda #pdaAutism

* This toot was made by rearranging some words I swept up from under my desk this morning and tied together with old spaghettis.

I’ve recently had to push through my stuff to tackle clutter at home. Simple things like having visitors, or getting tired of putting them off, calls my attention to my challenges. For me I think the ultimate issue is that the idea of having to potentially interact with others while I’m decluttering causes anxiety and derails me. So instead I do it in the middle of the night, like grocery shopping.

@actuallyautistic @actuallyadhd #ActuallyAutistic #AuDHD #ADHD #PDA #clutter #SocialAnxiety

Got 1st bicycle in a long time.
Today rushing to catch the bus (#PDA #NDprocrastination yay)
I tangled the hose from my insulin pump around the handle bars, swerving and crashing
Speed was low, so more a theatrical fall than a dangerous one
Big audience
The tube did not pull out of my injection site yay!
Scraped knee but didn't damage my last pair of nice pants yay!

Got on bus- now feeling very achy and old.

[We now return to our regularly scheduled program]

Replied in thread

@dave @actuallyautistic what you are describing resonates very deeply with me.

For me, PDA is like a surge of anger, that makes me clench my teeth whenever someone asks me to do something. I feel frozen in the spot, like my body just revolting against the mere thought of doing something i did not think of myself.

For me, fear plays a big role too. I am scared of people loving me less if i say no. I feel guilty for not having thought of the demand myself and like a failure if someone reminds me of a task i did not do.

In many ways it feels like a catalyst for a lot of negative feelings i have which in the moment of the demand get projected to the person that asked.

Many people accuse me of just being a scaredy cat or not self confident enough to “just do stuff” and want me to push my limits. Which i appreciate on the one hand because i am too scared of shit but on the other hand i so heavily lack the ability to trust myself that it is dangerous for me to push my limits.

PDA in addition to my trauma makes me constantly fight myself over the simplest of things and it is debilitating as fuck.

Virtually attended an interesting talk on #PDA at todays #NeurodiversityIreland summit. Was very interesting; talked about a paradigm shift about giving PDA kids a lot more control and autonomy to calm their nervous system. Still feel unclear about how one would achieve a balance between maintaining boundaries to ensure respect and kindness, and making life manageable as an adult, versus handing a LOT more autonomy over to kids.
@actuallyautistic @actuallyadhd

Back from a one week holiday in #centerparcs Longleat. We enjoyed ourselves and loved the location with plenty of activities to entertain all of us.

But perhaps the real highlight was our youngest eating some new foods (Bella Italia vegan pizza and garlic bread ... Which is an improvement over her last holiday staple food of French McDonald's fries).

Unfortunately we're needing to do things in 4s now and have a number of new teddy bears.

Small victories perhaps ..... #pda #autism

The #Sega IR 7000 Communicator #PDA.

A few days ago my lovely kiddo (who inherited my game collecting habits 😂) happened to find two of these at a yard sale and snapped them up!

These are much cooler devices than I had initially thought they would be but they are not terribly intuitive.

Does anyone know where I can find a manual for these online? I cannot seem to find one.

Tagging @SuperSelena64 and @Robavince in hopes that one of them might know.

Continued thread

So after finding the MP130 page on the PDA-Soft website, today I decided to take it apart further to see the other side of the board, at U43.

Hmm, he’s looking a bit askew.

Poking at it lightly with a tool pick, and just just fell off! Well there’s your problem!

Spotted a Newton 130 advertised as not working, and picked it up for $34. While until now I've had luck with several "not working" devices just being user error, even if it actually doesn't work, it's still worth the price in parts (like the pen! My only other Newton pen has fallen apart, and I've literally never seen another Newton pen for sale, just lots of eMate ones)

Well it just arrived, let's take a look

As I'm processing this PDA thing and the way it's been breaking my life for...my entire life...I realize that despite being (I hope) an ally and advocate for people with disabilities, I actually have a CRAP TON of internalized ableism.

Like: thinking I'm just a burden because I can't human properly; expecting too much from myself; thinking that I'm only worth something if I'm doing a "real" job; etc.

I don't think those things about other disabled people, so why am I punishing myself?

#ADHD#PDA#PDAautism

So, given that we suspect our #autistic 8yo is #OCD as well as #PDA, and every service/waiting list/alleged professional that could help has thus failed to meet or accommodate us: how long on average until one of us gets arrested, sectioned, or hospitalised?

I just wanna know what to expect, for once.